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Life Update—February 2024
It has been several months since my last update. I took a step back from socials and blogging to focus on my “real” life. Tomorrow is Rare Disease Day, so it feels like the right time to give an update. I’ve been feeling a bit sick and fatigued lately, but I have an appointment with…
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Life Update—June 2023
June was terrible. I had high hopes, and I think that was my first mistake. Since I had no big plans, I was looking forward to a calm and relaxing month. I unfortunately ended up getting the exact opposite. It feels like everything that could have gone wrong, did just that. Between car troubles, work…
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Life Update — May 2023
May has without a doubt been the most exciting and rewarding month of 2023 so far! I have good news on all fronts. Firstly and most importantly, I’m so happy to report that my labs are stable and I am considered “non-nephrotic,” meaning that my kidneys are only spilling a negligible amount of protein. In…
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Life Update — April 2023
This has been a busy month, to say the least! I started the month off by traveling to Austin to speak on a patient panel for a pharmaceutical company. It was a great experience and I got to meet two wonderful women who are also affected by rare kidney disease. I am so thankful to…
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Life Update – March 2023
I’m a bit late writing this (it’s April 5th) because March was, for lack of better word, overwhelming. I didn’t get a whole lot done outside of work and my regular obligations, but that’s okay. This past month has been one big, annoying reminder that I have to be patient with myself and my not…
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Life Update – February 2023
This month has been one for the books! I had the opportunity to go to the Texas State Capitol and advocate on behalf of IgAN awareness with my fellow IgAN Foundation ambassador and a couple of other lovely women. I was amazed and impressed by how much hard work is being done. As nervous as…
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Simple Daily Self-Care for IgAN Patients
Taking care of your physical and mental health is crucial for people with kidney disease. Self-care practices look different for everyone, and yours will depend upon your needs and abilities, as well as your preferences. Even if you only spend a few minutes a day doing something for yourself, I encourage you to try out…
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Maintaining Your Mental Health Post-Diagnosis
Being diagnosed with any medical condition can be overwhelming, and it’s not uncommon to experience a range of emotions including anxiety, fear, and sadness. With the advancements in medical technology, there is much hope for those diagnosed with IgA nephropathy, but many IgAN patients still struggle with staying positive. Here are some tips on how…
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How Do I Know What To Eat?
Disclaimer: The information on this site is for educational purposes only and is not a substitute for professional medical advice. Only a licensed medical professional can diagnose any illness. Please talk to your doctor before stopping or starting any treatments or making changes in your diet or exercise. Food and diet are among the hottest…
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Life Update – January 2023
As many of you already know, a few months back I received a diagnosis of IgA Nephropathy, a rare and incurable autoimmune disease that causes damage to the kidneys. I have been living with Stage 3 kidney disease for almost 6 months now. Things have been going well health-wise since my diagnosis—the disease has slowed…
